Walsall Fibro and ME Link are a volunteer run Support Group for those with M.E./CFS and Fibromyalgia, their families and carers. We’re run by people affected by both conditions.
Our main objective is to break the isolation that can come with these conditions. We have Support Group Meetings once a month in Walsall, a Group Library and produce a monthly newsletter.
We are able to provide information about local services available as well as self management and also help raise awareness within our Community.
Affecting 2.9 – 4.7% of the population (at least 1.9 million people) Firbromyalgia is more common than ME/CFS. More people have Firbromyalgia than Rheumatoid Arthritis.
Children can also be affected.
Myalgic Encephalomyelitis (M.E.) and Chronic Fatigue Syndrome (CFS)
250,000 people in the UK are affected by M.E. and/or CFS – that’s more than those with MS and Parkinson’s put together.
25% of sufferers are severely affected from housebound to bed bound, with the most severe 5% needing total 24 hour care and tube feeding.
Those who are most severe often feel invisible and as a result find it difficult to access services available.
Symptoms of ME/CFS
- Persistent flu-like illness
- Muscular pain, twitching, cramping and stiffness.
- Numbness and nerve pain.
- Persistent exhaustion – disabling fatigue.
- Joint pain.
- Disturbed sleep.
- Poor concentration and brain fog.
- Sensitivity to noises, bright lights and touch.
- Irritable Bowel Syndrome.
Symptoms can fluctuate from day to day and even within hours. Many of these symptoms overlap with the symptoms of Fibromyalgia.