Walsall Fibro and ME Link are a volunteer run Support Group for those with M.E./CFS and Fibromyalgia, their families and carers. We’re run by people affected by both conditions.
Our main objective is to break the isolation that can come with these conditions.
We have Support Group Meetings once a month in Walsall, a Group Library and produce a monthly newsletter.
We are able to provide information about local services available as well as self management and also help raise awareness within our Community.
At our monthly meetings we endeavour to get a speaker to talk to us about related topics that may help sufferers reduce the effect of the many symptoms of fibromyalgia, ME and CFS etc.
In the last 12/18 months we have had a number of speaker’s including:
Laughter Therapy, Bowen Therapy, Film Evening, Craft Evening, Clinical Psychologist in Community Neuro rehabilitation Team, ME Awareness evening, Dr Sarah Myhill’s talks from Oxford, Card making, Walsall Health Watch, Talk by a local GP, Speaker on Depression.
Affecting 2.9 – 4.7% of the population (at least 1.9 million people) Firbromyalgia is more common than ME/CFS.
More people have Firbromyalgia than Rheumatoid Arthritis.
Children can also be affected.
Myalgic Encephalomyelitis (M.E.) and Chronic Fatigue Syndrome (CFS)
250,000 people in the UK are affected by M.E. and/or CFS – that’s more than those with MS and Parkinson’s put together.
25% of sufferers are severely affected from housebound to bed bound, with the most severe 5% needing total 24 hour care and tube feeding.
Those who are most severe often feel invisible and as a result find it difficult to access services available.
Symptoms of ME/CFS
- Persistent flu-like illness
- Muscular pain, twitching, cramping and stiffness.
- Numbness and nerve pain.
- Persistent exhaustion – disabling fatigue.
- Joint pain.
- Disturbed sleep.
- Poor concentration and brain fog.
- Sensitivity to noises, bright lights and touch.
- Irritable Bowel Syndrome.
Symptoms can fluctuate from day to day and even within hours. Many of these symptoms overlap with the symptoms of Fibromyalgia.
What our members think….
“The Support Group has been a lifeline to me over the years, breaking the isolation that comes with M.E. and Fibromyalgia.
Each month at the meetings I know I’ll meet up with people who can relate to what I’m going through”
RAISING MONEY AT THE SUTTON FUN RUN
Black Country Neurological Alliance
The Black Country Neurological Alliance have been very supportive in helping us raise awareness for ME and Fibromyalgia, including with the Clinical Commissioning Groups (CCG’s) across the Black Country.
One of our members is on their Committee as a volunteer Neuro Supporter.
They are currently working with Walsall CCG in the recruitment of a new Consultant Neurologist and the redesign of Walsall’s Neurology Service.
Earlier this year a protest took place in cities all over the world, fighting for the right to equal access to treatment and research for people suffering from M.E. and CFS.
We are in the early stages of planning to hold a second millions missing protest in May 2017 in Birmingham along with South Birmingham ME Support Group.